It's easy to see why our team keeps such a close eye on Dan - turns out this whole bone marrow transplant thing is really very complicated. Things are going as well as can be, but while the donor marrow and Dan hash it out, his poor body gets quite a beating. Dan's progress has plateaued somewhat from the leaps and bounds of improvements he made soon after the transplant. He feels so much better than he did a month ago, but still doesn't feel completely normal. We've been at this a long while now and feel at a bit of a lull.
Although we're pretty much "over" dealing with all of this, I assure you, we're still finding our little joys. We always feel at least a little anxious watching a rash, treating a rash, hanging IV fluids, meeting with doctors, nurses, nutritionists, pharmacists, not to mention the always-looming fear of relapse, but despite all of that, our life out here is pretty great. We spend nice, quiet mornings drinking coffee and watching the news, fun afternoons exploring the city, and relaxing evenings catching up on shows or playing a game. We get to spend every minute together and have developed a whole new language from all of the inside jokes we've made. We treat ourselves to coffee, dessert, and snacks anytime and and have no where to be except a couple appointments throughout the week. We feel the love from all over the country through mail, packages, texts, and emails, every day. All of these things make managing the side effects a lot easier. This is why we're here. This is our job. Dan is a patient and I am a caregiver.
HAPPY NEW YEAR!