It has been a very eventful month since my last blog. Cycle II took about 5 days with tons of chemo, but caused minimal side effects other than fatigue and more hair loss. I was sent home to recover until a biopsy a few weeks later after my body had time to recover. On May 3rd, I had a regular check-in with Dr. Broome and went home, only to go right back because I had a temperature of 101.5 (I’m instructed to call and head to the hospital if its over 100.5). I was pretty bummed that I had to be admitted, but not worried (I needed a break from the hospital meatloaf). This “neutropenic fever” happened twice before and meant spending 4-5 days in the hospital on antibiotics. That evening, I got extreme chills that I was unable to shake even with a zillion heated blankets. Quickly, there were about a dozen nurses and doctors surrounding the bed. My blood pressure fell drastically, my heart rate climbed dangerously, and my temperature spiked to over 105 degrees. The medical team acted quickly, but they remained calm and reassured us that I was going to be fine. Our friends Dr. “Jimmy” McCloskey and Mary Ellen, who work at Georgetown, both happened to be there visiting with us at the time and sprung into action with the rest of the team. They were so helpful and added to our peace of mind. Luke happened to stop by for a visit and was able to stay with Hanna. It made everything much less scary to be surrounded by our friends during those horrible moments.
That pretty much brings us to yesterday when I had a bone marrow biopsy to see how effective the first round of chemo has been. Since I can't have a transplant until the cancer is in remission, the results of this biopsy are crucial. Dr. Broome said the marrow looked clear and promising, but we won't have the official results until later this week. Please say a few extra prayers that the results come back as remission so we can make plans to head to the west coast in a few weeks. We are planning to re-locate to Seattle, Washington for about 100 days to have the bone marrow transplant at the Fred Hutchinson cancer center. They specialize in transplants for ALL and have some of the best success rates and most experience in the country....a nurse told us that the Princess of Saudi Arabia had a transplant there so it must not be too shabby. We are very blessed to be able to consider this option and look forward to taking this next step on the journey to a cure.
I know I have said it before, but I have to mention again that everyone's thoughts, prayers, and kind words and gestures have truly inspired us to put all our effort into this fight. Not gonna lie, this has been the scariest leg of the race so far, sometimes leaving me to wonder how I am going to get through this. But those moments are overshadowed by moments of hope, inspiration, and love brought on by the kindness and love of everyone on this journey. With the help of our medical team, our strong faith, and the outpouring of support from family and friends (and friends of friends we don't even know), we know that we can do this. and we WILL do this. And no matter what......
ALL Will Be Well!
"Hope is a good thing, maybe the best of things. And no good thing ever dies."